Betas

To update you on last week’s very exciting post, our home tests were followed very quickly with a blood draw: the only one I haven’t dreaded.

I knew we were pregnant, I needed to know how pregnant – that number would tell us if this pregnancy was likely to continue or just a blip on the radar.

Thankfully, our first number was 260. 5 days later we were followed with 2300 – an excellent “doubling time”. HCG should double every 48-72 hours, mine had doubled in 38.

Then test number 3 followed a week after that one, with 14300. I finally felt like I could breathe a little bit. All we had to wait for now was the scan: once I’d heard that wee heart beating, we felt like we could tell our close friends and wider family.

It felt like the longest wait of our lives.

Testing time

In an unprecedented move, I did not take a home pregnancy test until 8 days after my transfer (8dp5dt) which is the equivalent of 13 days past ovulation. I am usually a hardcore tester, often starting a few days earlier than this point, and getting more and more disenchanted with every line-less test.

Usually you have a very definitive idea by 9dp5dt (also known as 14 days past ovulation, when for many, periods are due) and I never wanted the call from the nurse to be a painful surprise. So testing beforehand is always my choice.

Maisie requires so much of my energy and brainpower, that I just didn’t bother this time – I honestly was too distracted. I didn’t have any symptoms either than my usual tiredness, my super sensitive nose (which happens every time due to the progesterone) and the only one I hadn’t had before: I was running a slight temperature.

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So when I came home 8dp5dt with a full bladder, hot and moody as hell, I decided to just bite the bullet and get it over with. I pulled out one of my old cheapie sticks, peed on it, and took it immediately into the bedroom while I changed into my usual comfy clothes, refusing to look at yet another stark white negative. I was used to testing without telling my husband, and throwing them away.

When I finally could bring myself to check it, I could see the faintest of second lines. I squinted at it, knowing that I’d “seen” a second line many times before (in desperation), but this time it was definitely actually there.

I ran through to my husband and by now I’d started to cry. His first thought was that someone close to us was dead, and so was very alarmed at how hysterical I was.

I made him check that there was in fact a 2nd line and that it was pink. It was definitely there. Once I’d calmed down, we let ourselves get a little bit excited.

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And then I tested the next morning with 2 sticks (cause what if one is faulty right?!) and they both came up with stronger lines.

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And then the morning of the blood test:

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(Sorry if pee sticks creep y’all out).

It’s pretty hard to believe – but lucky number 5 worked.

I am pregnant.

We didn’t celebrate just yet, we were waiting on the beta (first blood test), so I was holding my breath until we heard a good number. Then holding my breath until we heard a heartbeat, and then we decided we MAY start to relax (but I doubt it).

It has been very hard keeping this to ourselves. I immediately told my closest infertility buddies (because I had to tell someone immediately), and then when we got them face to face that weekend, we told our parents.

This was all 9 weeks ago – I hit 13 weeks on Thursday and all is going well. I’ll fill you in on the thoughts you have missed in upcoming posts very soon.

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I cannot thank you all enough for your endless support and love. Pregnancy after infertility never comes with the greatest of confidence – you are always waiting for someone to snatch it all away again. But I want to do the cute things that have always made me so jealous, and so my social media is about to become a bit excited. Please feel free to take a little distance if you need it.

For now all I can think is:

thank you

thank you

thank you.

All our dreams might just come true.

Transfer day

Transfer number 5 was set for day 22 this cycle: way later than any other transfer I’ve had. When I queried it, they explained that they just schedule you in where they could fit you, and it was a particularly busy schedule for this month! So no scan until day 17 and it felt like I was on the estradiol (estrogen) so much longer, despite it only being 4 more days.

Because of this different timing, transfer day fell in my week off. I booked it because we were hoping to have a holiday, and I also never work on my birthday. And then of course we were getting Maisie, so it was really helpful to have the time at home with her.

 

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It was super weird knowing that we would transfer an embryo, and then 2 days later, I would turn 34. We started trying when I was 30 (a few months shy of 31), and all through this process, everyone has been telling us how young we are, how much time we have. Now we’re suddenly a year away from being “less likely to succeed” in any of this, and with limited embryos/finances to fund more IVF, we are looking at a single child (if that).

However, if that’s the outcome, we embrace it. “Spoiled” single child coming right up.

 

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On transfer day, I channelled the above image: I was calm and collected. I surrendered to the process and believed that the dilatation would make it the eas(ier) transfer we hoped for. I was scheduled later in the morning so that my specialist could do the transfer himself. He wasn’t due to be doing many transfers that day but wanted me on his schedule.

And like an idiot, despite having done this 4 times already, I let myself get distracted by Maisie and didn’t drink all of the water I needed to to get a clear ultrasound for the procedure. I ended up lying on the table for 40 minutes (and drinking some more water), before they had a clear enough view. I was usually an A+ student at this and super full by our arrival at the clinic. I was so embarrassed, but luckily being the last on the schedule, I was able to lie there (albeit in the rather warm room – embryos like it toasty) until we were ready to go.

Unfortunately, it was still difficult. Different catheters and rods were used, my cervix was clamped and pulled down (always fun), and it still hurt. But way less than the others (#4 was particularly traumatic), and with no cramping, and no bleeding. I was deflated but still hopeful.

And the wait began. Oh how I am tired of waiting. But wishing and praying and hoping as hard as I can.

 

Number five

After what felt like an interminably long wait, my cycle finally started and away we went. The hysteroscopy totally confused my body, obviously, and it was frustrating to say the least.

Back on progynova, it didn’t take long for that familiar exhaustion to set in. I met with my specialist a week in to discuss my surgery, and he was happy with the results and my very quick recovery. Apart from the haze that is general anaesthesia, I had no pain or adverse side effects. Always nice to have a win.

Just under a week later, I turned up for my standard blood test and quickly learned that I was an idiot who had made stupid clothing decisions that morning, having picked a dress with sleeves that don’t roll up. It’s the first (and will now be the last) time I’ve had to undress unnecessarily in a medical office. Luckily the older nurse who was taking my blood was more bemused than anything. “It’ll just have to come off!”, she exclaimed. Well okay, thanks. Off it came.

I think I’ve met everyone at the blood clinic at least twice now. There’s only one same day clinic close to my work, and they open at 7am, so that’s when I go. Sometimes there are 10 people already waiting there (especially on a Saturday as they are the only one open) but sometimes I am the only one there. I’ve gone from a slight needle phobia to just shrugging it off. Which is also funnily enough now my reaction to transvaginal ultrasounds.

Speaking of which, my scan was less eventful. I was at 11mm lining (they like you over 7 or 8) and it had the “triple stripe” appearance, which is best for implantation. We were all set for transfer in 5 days. 5 days til transfer of number 5.

Lucky number 5?

 

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Holding on

So I took a hiatus. From social media, from reading and obsessing, from tracking and counting.

It was good for my heart and soul.

 

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The sadness after transfer #4 was all-encompassing. Going into round 2 we felt so sure that this had all been terrible luck, and we just needed to go again, and pinned far too many starry-eyed hopes on that embryo. The negative result was crushing.

I’d go through my day in a numb haze and then find myself getting into bed at 8pm to cry. I’d try and fill my waking moments with podcasts and YouTube; there wasn’t going to be a moment free to think about the emptiness. My uterus felt heavy and hollow and my chest hurt. Everything hurt.

 

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In early March, I went back to the specialist, and he assured me hope was not lost. He was impressed with our 2 remaining embryos and he felt we had a good chance. But my continued difficulty with transfers was probably affecting our chances, and it was time to do something about it.

We scheduled a hysteroscopy and dilatation. And with my health insurance, we could do it in 2 weeks. It was all go.

Right before I went into hospital for the surgery, we put down a deposit on something very special. And then there was Maisie.

 

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I wasn’t trying to be that infertile woman who gives up and goes and gets a dog, but we decided it was time and we were tired of waiting. Maisie is a spoodle: half poodle, half cocker spaniel, with soft downy fur and sweet eyes. She veers between wild excitement, holding our house hostage with her feistiness, and sleepy puppy. She took over our lives and made us totally forget all of this mess.

Surgery went well and took about 26 minutes, with my surgeon/specialist considering it a success. My uterus looked good, my tubes were clear, and everything was dilated as expected, to help future transfers.

Now, he said, we could get going again. Once my cycle restarted, we’d be back on the drugs. One of these embryos would be thawed and we’d give it all another go.

And so the wait begins.

It’s not fair.

It’s a really hard time for us right now.

We were so grateful and excited to start our 2nd round of IVF last month. I was on a slightly lower dose of medications – the discomfort was lower, the process was easier, and we were blessed to get a good number of eggs again. As usual, we had our typical drop-off, but still had embryos to work with.

Then everything started to crack a little. Despite feeling confident we would be lucky this time, the pregnancies started to happen en masse again. In my infertility group, in my RL friend groups. 2nd children were planned and conceived.

Just like that.

Oh how I envy those with the luxury of being able to plan. Of choosing a time of year that will be convenient for them.

* * *

Almost everyone we know going through treatment is finding success. That magic fix of IVF that they needed? Bam, worked like a charm. First or second embryo transfers, there were the two lines. The positive blood tests. The excited announcements. IVF worked! Like it’s supposed to.

It felt like everyone else was finding it so much easier. And despite our usual: good embryos, awesome lining, responding to everything like a champ? No luck. Embryos just won’t stick. Four in so far, and none want to stay. My transfers are difficult, but the odds surely should eventually be in our favour. Everyone in our team is confused, and my brain is just:

why.

the.

fuck.

not.

This is all we want. We’re ready. We’re trying so hard.

It’s so emotionally exhausting and physically draining. I don’t want to be a negative statistic. Every day I wonder how many cycles we can do it without it just irreversibly changing me.

But then again, I can’t ever stop. I can’t bear the thought of giving up – something has to work sometime, right? We have these frozen transfers, then we try another stim cycle/egg collection, and whatever transfers come from that?

Then what?

Do we pay privately again? Bankrupt ourselves? Borrow money?

Go on the adoption waiting list for the next however many years? (NZ has a tiny number every year).

Try and adopt internationally, for thousands more?

Get an embryo donor? A surrogate?

None of these options feel good right now. None of them feel right, right now.

But the one thing I can’t see myself ever coping with is being childless. I don’t think I could just “get used to” being a couple without kids. Learning to enjoy life without our own family. It’s just not on the cards for me. I don’t want that to be my normal, because it probably will never feel normal.

It’s hard not to feel utterly defeated and that treatment won’t work for us. If we can’t figure out why, then what do we do? Try more transfers and hope it’s a numbers game? Feel like we’re running in circles without a result? It feels futile and heartbreaking and wrong. And so. damn. unfair.

So unfair.

I’m so tired of it.

I’m so scared that it’ll never be us.

We keep being told we’re so young, but we’re 3+ years in and I’ll soon be 34. Yes, we have time, but how much time? How many more years do I mess with my body to try and get just one baby?

* * *

And then the advertising began. I don’t know if it’s my age group or who I follow or what, but instagram, Twitter, Facebook, YouTube… all they serve me are Clearblue test ads, baby lotion ads, nappy ads, and the worst? An ad for my own fertility clinic.

I want to throw my phone in a lake and go live in the woods.

My current plan is a social media hiatus, which I started yesterday. It’s actually kind of refreshing not to be checking and reading obsessively all day. I find myself opening my phone to look and then realising I’ve moved all the apps, and putting it down. Maybe I’ll start actually reading books again.

So for now, I don’t know.

What do I write about?

Everything sucks.

Everything hurts.

We are still failing.

I don’t know what else to do.

But hopefully soon I’ll not feel so broken, and be ready to try again. Right now, no thank you. I am off the hormones, I am off the restrictions, I am off thinking about it constantly.

I’m trying to enjoy life as it comes. I’m trying to focus on work, and losing some treatment weight, and thinking about everything except my empty uterus.

I’m trying to breathe.

Round 2

Here we go again.

Deep breath. In, out. Quiet your brain.

You’ve got some time yet.

Do some yoga.

Drink more water.

Less coffee.

No booze.

Fewer carbs.

More green things.

Try not to worry about the weight you’ve gained in the last few years.

Try not to worry about any other medical issues they may not have found yet.

Try not to worry about getting time off work, it’ll happen.

Try to think of how to write it down on paper. How to express this anxiety that seems to be coursing through everything.

Mute your watch’s heartrate warnings.

Do some more yoga.

Breathe in, out. Don’t forget to do that.

Focus on work during the day, and being calm at night.

Calm. You’re supposed to be calm.

Don’t try to rid yourself of the worrying thoughts. Just turn them down. Lower their volume. You can worry all you like – hell, you’re going to whether you try to or not. Just try and lower the noise.

Think positively. Or something.

Don’t be scared of the negative thoughts, too. It’s normal.

Think about better success rates for round 2. Think about going into it with experience.

Think about the injections being a breeze, the scans being old hat, the ovaries doing their thing.

You’ve done it all before.

You got this.

Just breathe.

Happy new year

2017 was a hard year for us, as it was for many.

There were happy times — friends had lots of positive news to share, we renovated and moved into our lovely home, we spent a lot of time with family, but it was hard. I never expected we’d start treatment in January and finish in September at a dead end.

And now 2018 is here, and we’re set to repeat it all again – but hopefully with better results.

After being back in New Zealand a year, I definitely feel more settled, especially now we have our own home. I’ve spent the last few months trying to put the heartbreak of infertility behind us and out of mind, which is always easier said than done.

In late October we had what some of us call the “WTF” appointment that you have after failure (hate that term though) and our doctor kindly had run further tests to see if there were any genetic/chromosomal abnormalities that he could identify (i.e. are we missing any parts of our chromosomal makeup?) and also ran an antibodies test on me which would highlight some common immune issues. Everything came back clear, and despite it being “unusual” that we would be unsuccessful after 3 embryo transfers, the only real advice he had was what we were expecting: try again.

He said he’d send an enquiry about our position on the funding waiting list, too, seeing as we can’t afford to do another round privately, and he’d let us know.

A few weeks later we received a letter from the ministry funding team. We weren’t up in April or May. We weren’t March. We could start in January.

And now it’s January.

So, my friends, I’ll update when I can, but we’re starting from the top. Stims, scans, egg retrieval, transfer. Hopefully more embryos. Hopefully more luck. Hopefully a baby!

I’m not 100% sure how I feel – why would it work this time when the treatment has done nothing but fail us? But we have to try. Everything we can.

Here’s to 2018. I hope it brings you everything you’re hoping for.

Hitting pause

 

What keeps me going is this constant thought at the back of my mind that we’ll look back on this one day and remember it as pre-baby.

What keeps me going is excitement and hope for all those milestones and firsts; for all those special moments as a family.

But what happens if it’s something that never comes to be? I’m always trying to reconcile that and cushion myself for that blow in case it’s our reality. But right now I can’t accept that as a possibility. I have to keep hoping.

What is life without our family when it’s been a life goal for both of us for so long? What other plans do we make? We’re not big partiers, we barely drink, we’ve done so much travel and accomplished so many things in our lives. We’re so ready and so passionate.

Adoption in New Zealand is extremely difficult, near impossible. Surrogacy is a possibility but there’s no reason why I can’t carry our babies, that I know of. We just need one to stick. But time after time it’s just out of reach.

The conditions have been right but we still don’t make progress. We follow every rule but it still won’t happen. We hope and pray and support and love our friends and family and make good choices and yet we can’t get these stars to align.

It’s out of our hands and seems to be luck more than anything. And it’s hard knowing we’ve reached $20,000 spent and are still childless.

I’ve never felt such lack of control over anything in my life. It’s tougher all the time and some days I struggle to put a positive face on. But maybe you can help. Please keep hope for us. Maybe collectively hoping will send more positivity our way.

I am so hopeful for all of you, too.

I will keep trying to write here, but for now we’re focusing on our home and getting a pup, and maybe in 2018 we’ll have better luck. Because it seems to be mostly about luck. And for now we’re all out.

 

Plans

Tomorrow it will be July, and we’re taking a break.

We’ve been in treatment for basically 6 months now, and I’ve always wondered how much to share here. Only a few close friends/some family have ever known exactly what stage we’re at, and for our privacy/to save us questions we’ve kept it that way. But an update for you: we have no good news. Nothing but bad news, I’m afraid.

To keep myself sane and for the sake of my body we’re giving it a rest. We’ve got some tough decisions coming up and the last thing I need is to go right back on hormones and carry on when so much is riding on it. We’d love the world to pause as well – it’s hard knowing so many have started trying, successfully conceived and given birth all in the time we’ve been trying. Many friends are on their 2nd or 3rd kid. We’ve spent half of our savings and are no closer to our first. IVF is the reason we don’t have a house deposit.

I feel like my brain has not thought about anything else for so many years now, that I don’t know how to rewire it back. I don’t know how to see the world without this lense of infertility over it.

It’s hard not knowing whether there is something else wrong that we just can’t see, or whether it’s just luck of the draw. What if we just keep doing this over and over and failing and have no idea why? My husband has wonderful endless optimism: he is sure it’ll work soon. I don’t know anymore. I have good days and bad days. I’ve seen infertile buddies have success and I’ve seen a few give up, no hope in sight, having to reconcile their dreams as something that will never happen. How could I just put this to one side? It’s so much of me.

So, we have plans. The rest of the year will fly by I’m sure, and we’ll be carrying on with treatment. But for July, I’m going back to Hot Yoga. I’ve got a trial to a local studio for 2 weeks, then I’ll probably buy a 10 pass to see me through til mid-August.

We’re looking at puppies. A dog has always been in the plans and on the radar, and as we joked last night, even an expensive dog is cheaper than an embryo transfer. We’d ideally be getting one in September, as hopefully the house will be done by then.

We’re hoping to move into the house in August, but we’ll see how it goes. We’ve made so much progress – the insulation and new wiring is in, and once the drywall goes back up, we’ll be able to have the electricians back to add our new switches, etc. The kitchen will hopefully go in this month, though the counter tops will take longer. The wardrobe in the front bedroom has been opened up so it’ll be quite large, which is great (I probably have more clothing than anyone you’ve ever met). The floors need a sand and polish, but the Mr hopefully will be able to do that himself. Hopefully we can find a plasterer to sort the gib and then we can decorate. I’m dying to unpack. D is going to start building some of our furniture, too.

The baby’s room will still be the baby’s room. The rocking chair will still be built, and our stuff will probably overflow into it for now, but it’s not going to be anything else. In our old place, I used the spare room to get ready in, and I may still do that on mornings that D is sleeping. But otherwise we’ll be collecting things and putting boxes in there, and eventually it’ll no longer be a sad room. We have plans for wall decals and to paint the walls like the sky. I want to put glow in the dark stars on the ceiling. We’re painting a blackboard wall somewhere, hopefully near the kitchen, for menu planning and little hands to draw on.

We’re also planning a trip. Hopefully in the summertime we’ll go down to Mackenzie Country and camp near Lake Tekapo and enjoy the best stargazing in the southern hemisphere. I’d also like a weekend away soon, but with the house that may not happen.

All is not lost, but we’re hitting pause. Hopefully it’ll be a really positive break.

Thanks as always for your love and support.